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An aHUS diagnosis, lucky or what?

It is hard to believe that it will soon be two years since the aHUS Diagnosis Process project began. It began when a parent of an aHUS patient contacted Global…

That was the aHUS Rare Disease Day Video that was

65 questions, 29 article blogs with answers to the questions published between 7 March and 16 May and over 300 views of the video aHUS alliance Global Action fulfilled its…

What about aHUS and COVID Vaccinations and access to genetic testing and genetic research

There was one question about COVID vaccinations and aHUS in the RDD2022 Video, Global Action featured several articles about COVID vaccination including advice given by clinicians as well as the…

Symposium on aHUS in 2022

The twice delayed ISN Frontiers Symposium on Complement related renal diseases - MPGN/C3G and aHUS is still on course to be held in Bergamo, Italy on 23rd to 25th June…

Questions about aHUS triggers

It is known that certain rare genetic variants, mutations, or markers, in components of the Complement System make some people susceptible to aHUS. it is less known that there are…

Incomplete aHUS penetrance in families

Although aHUS has genetic causes, in the majority of cases it is found that the patient is the only one in the family with the genetic susceptibility for aHUS. That…

Hormones and aHUS

Questions about hormones and aHUS in the RDD2022 video. It is a feature of aHUS that it becomes more common in females after puberty and during pregnancy. Both puberty and…

aHUS remission chance and relapse risk

Remission from aHUS is different from having been cured because there is still an uncertainty that aHUS can return. If that happens it is called a relapse. For a relapse…