Stopping aHUS treatment when no longer needed is a big decision for patients. Global Action put the patients research agenda question to our expert. Can a complement inhibitor be stopped…
Genetic testing again a topic but this time it is of the patient; and is important for prognosis as well as diagnosis of the patients. However some healthcare providers are…
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Algorithms to diagnose aHUS apart from other syndromes of TMA exist, but why do these tools with problem solving steps seem under-utilized?
Atypical HUS research highlights for Sept 2023 – additions to our aHUS-specific research library
Anyone who can get aHUS can get it any time. That makes sense the disease is just the product of a known or unknown genetic factor and a trigger. If…
There are two involved in a pregnancy and birth the mother and the foetus /baby. The mother may or may not have had aHUS before or during birth. Usually it…
We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life. Their chances used to be that did not survive…