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Thinking More About aHUS Today.

So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it was something that gives some people aHUS. There is…

Videos about aHUS which make you think differently

Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other eminent clinicians from the Boston hospitals held a symposium…

#TMABoston Live

Post-Event Update:Presentations were videotaped, and appear on ourAtypical HUS Clinical Channel as the key asset of 2017 aHUS Awareness Day (24 Sept).Our sincere thanks to all participants & attendees at…

Complement-mediated TMA awareness- did you know it was aHUS?

Earlier this year the website featured an article ( click here )about the nomenclature used to described aHUS. Clinical articles now feature many terms to describe differences in what was…

AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017

Post-Event Update: Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel . (These were the key assets for aHUS Awareness Day:…

Why is Complement “Complement” ?

It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who gave the name "Complement" to the part of the…

Thinking aHUS gets there in the end

Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than it used to be , getting a diagnosis is…

Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS

Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.