RESEARCH THAT MATTERS TO aHUS PATIENTS IN KIDNEY WEEK 2018

Kidney Week 2018 – aHUS Alliance overview of presentations that matter to the atypical HUS community. Links to ASN presentations and abstracts on topics such as complement, kidney transplant, pregnancy, eculizumab, thrombotic microangiopathy, HELLP, aHUS global registry, and more.

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Atypical HUS Fact Sheets – Sept 2018 Editions

Atypical HUS Fact Sheets (released Sept 2018) provide aHUS -specific research and info about the rare disease atypical Hemolytic Uremic Syndrome or aHUS. Available in 2 formats: an ‘In Brief’ print friendly pdf, and a full length version (17 page) with links to current atypical HUS research (with citations) and key topics of interest to physicians, aHUS patients, and their families.

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Third Stop Bergamo Italy and another aHUS Expert Centre

Bergamo IT – Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 3rd Stop: Mario Negri Institute, the Centro di Ricerche Cliniche per le Malattie Rare “Aldo e Cele Daccò”

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Atypical HUS 1.0

What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.

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Where the heck did that come from?

Len Woodward was a founding Trustee of aHUSUK and a founding affiliate of the aHUS Alliance. He is also a Director Trustee of aHUS Alliance Global Action. In this series…

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Someone has to be the first

Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology , which would be of enormous significance to those…

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Atypical HUS: Symptoms can be Perplexing

    People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the difficulty in speaking with their healthcare professionals about symptoms…

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