aHUS Day 2019
2019 aHUS Awareness Day, an overview of the 5th annual 24 Sept campaign to raise awareness for the ultra rare disease atypical HUS.
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aHUS Day 2019
A little aHUS Awareness means a lot
As the world slips into September 25th, another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best ever and there is a lot to reflect on.…
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A little aHUS Awareness means a lot
2019 Atypical HUS Fact Sheets
Atypical HUS: Fact Sheets & Research (2019 – SEPT – 2020 Edition) The aHUS Alliance provides informational resources about this rare disease for aHUS families & advocates around the world. Highlight boxes of aHUS research from the past year are provided in the full version, Key Facts and Research. The ‘aHUS: In Brief 2019’ version is a single page of aHUS facts to Print & Share.
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2019 Atypical HUS Fact Sheets
Research/Publications
Jump to Section: New Research | Critical Care | Diagnosis | Treatment | Discontinuing Treatment/RelapseThrombotic Microangiopathy | Extra Renal | Pregnancy | Transplants | Genetics | ComplementSecondary aHUS | Triggers…
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Research/Publications
Eculizumab Safety
Following on from its recent article about the safety of eculizumab ( see here ) the alliance has looked at two topics that matter to aHUS Patients. Pregnancy and Allergy.…
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Eculizumab Safety
Eculizumab- safe or not?
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished from those temporary and permanent ongoing ailments which follow…
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Eculizumab- safe or not?
Perspectives in Atypical HUS
The aHUS Alliance presents issues and information from varied perspectives within the atypical HUS arena. Amplifying the patient voice in over 30 countries, we present this series of original content on topics related to the rare disease atypical HUS with articles focused on key interests of patients, caregivers, physicians, researchers and other stakeholders,
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Perspectives in Atypical HUS
An aHUS research agenda case study
Last summer an aHUS awareness article appeared in the magazine of the charity Kidney Research UK. ( see article here). Ostensibly it is about aHUS and pregnancy which is one…
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An aHUS research agenda case study
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