Learning that you or a loved one have been diagnosed with a rare disease like atypical HUS is devastating. Imagine the fear and uncertainty that follows diagnosis when it becomes…
Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a rare disease. To be classified as a more common…
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
AUDIO Podcasts by Dr Brad Lewis of Machaon Diagnostics aHUS and Pregnancy aHUS/TMA in Pregnancy, with Richard Burwick, MD, MPH – Assistant Professor, Department of Obstetrics and Gynecology, Division of…
Article No. 316 1 February 2020 The alliance has featured what are known as aHUS consensus or status publications about the state of play aHUS diagnosis and treatment. The alliance’s…
Article No. 315 30 January 2020 Following on from the first spotlight on ravulizumab article about its dosing (click here to see) now the spotlight switches to its use in "specific…
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or in related components in your blood which cross talk and hamper Complement’s ability to regulate…