Article No. 350 18 June 2020 aHUS Global Action‘s blog about “aHUS in Deutschland” revealed an active patient support group for aHUS and MPGN patients. ( See previous article here)…
Article No. 348 10 June 2020 A few weeks ago saw an anniversary of the launch of this website. Not a big deal really. Just over four years ago a…
Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…
Article No. 339 17 April 2020 17 April 2020 - It’s a difficult task to keep track of COVID-19 news & research, especially since it’s a continually evolving situation. …
As COVID-19 research, vaccines & availability, and national/regional response vary greatly by year and location, aHUS Alliance Global Action reminds you to check with your medical team for advice and…
Learning that you or a loved one have been diagnosed with a rare disease like atypical HUS is devastating. Imagine the fear and uncertainty that follows diagnosis when it becomes…
Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a rare disease. To be classified as a more common…
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…