Article No. 377 16 September 2020 Atypical HUS: Key Facts & Info Atypical Hemolytic Uremic Syndrome - an ultra Rare Disease 2019 - SEPT - 2020 What’s…
Article No. 376 10 September 2020 It is not unheard of for someone with atypical Haemolytic Uremic Syndrome (aHUS) to have had an initial diagnosis of Thrombotic Thrombocytopenia Purpura (TTP). …
Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For a small number they may still not know what they…
Article No. 350 18 June 2020 aHUS Global Action‘s blog about “aHUS in Deutschland” revealed an active patient support group for aHUS and MPGN patients. ( See previous article here)…
Article No. 348 10 June 2020 A few weeks ago saw an anniversary of the launch of this website. Not a big deal really. Just over four years ago a…
Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…
Article No. 339 17 April 2020 17 April 2020 - It’s a difficult task to keep track of COVID-19 news & research, especially since it’s a continually evolving situation. …
As COVID-19 research, vaccines & availability, and national/regional response vary greatly by year and location, aHUS Alliance Global Action reminds you to check with your medical team for advice and…