Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those involved with their care. It’s difficult for parents to…
Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a causual link to some blood clotting following vaccination. There…
Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab trial was published ( see copy here ). 4 more…
What’s new in atypical HUS Research & Publications? aHUS Alliance Global Action – Keeping you updated with new aHUS research as of December 2020.
Article No. 398 4 December 2020 In its previous article "Dip into ASH 2020" Global Action highlighted research results relating to "aHUS" and "TMA" which are to be presented at…
Article No. 397 28 November 2020 The second major conference at this time of year with research results which matter to aHUS patients is the American Society of Hematologists'…
Harnessing the power of Nephrology Social Media – the aHUS Alliance looks back at KidneyWeek 2020 and its ability to inform & engage patient groups as well as medical professionals. How might Patient Experiences become better integrated to improve outreach and understanding for all stakeholders and initiatives?