Article No 441 18 June 2021 What topics and questions are likely to frame conversations about treating patients who have atypical HUS? Since aHUS diagnosis begins with ruling…
Article No. 440 11 June 2021 Sometimes aHUS alliances Global Action sees things written about aHUS on the internet which are not clear or wrong. Unintentionally misinforming or misleading. Seldom…
Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new articles on the subject. Recently two tweets were noticed…
Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those involved with their care. It’s difficult for parents to…
Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a causual link to some blood clotting following vaccination. There…
Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab trial was published ( see copy here ). 4 more…
What’s new in atypical HUS Research & Publications? aHUS Alliance Global Action – Keeping you updated with new aHUS research as of December 2020.