An unusual aHUS trial study ( No.NCT06312644) has begun which involves mothers with aHUS and their babies. The official title of the trial is Observational Study of Ultomiris® (Ravulizumab) Safety…
Pregnancy is an important topic and has featured a lot on this website. Quite a few questions about it in the RDD2022 video though. A lot ore is known about…
The topic of pregnancy and aHUS is included in the Global aHUS Patients’ Research Agenda. It has featured in articles on this website. It has been a subject of interest…
Article No. 454 aHUS triggered by pregnancy is relatively common and accounts for 16% of female ( 18 to 45 years) aHUS incidents. 75% of the incidents occur post partum.…
Article No 410 13 January 2021 The link between pregnancy and aHUS has been known for several decades. A chapter was devoted to it in Prof. Bernard Kaplan's book about…
It is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies. There are several causes of those TMAs. Pre- eclampsia…
Earlier this year ,when the alliance was responding to the Rare Disease Day video questions , aHUS Patient Megan contacted the alliance having read the blog about pregnancy and aHUS…
Not surprisingly, as it is one of the hottest topics* in the aHUS community, there was a high number of questions about pregnancy in the Rare Disease Day video. About…