The third aHUS alliance affiliates meeting was held on 28 June 2015 , the day after the second UK aHUS patients and families conference, which most of the international…
Another pathway for the reluctant advocate. All aHUS Patients and their families have had their own aHUS experience. When it hit them most knew nothing of the disease itself but…
The reluctant advocate journey continues. By 2014 it was not unusual for aHUSUK to get emails from news journalists from newspapers , radio and TV. It was a big surprise…
One mother’s personal story about her young son’s diagnosis with atypical HUS. Connected to the broader themes of what happens after a rare disease diagnosis as working parents strive to navigate, childcare, emotional stress, and family impacts.
The side effects of treatment and residual ailments of an aHUS onset featured highly by aHUS families in the contribution to the aHUS Patients Research Agenda. The topic is covered…
One of the newest alliance affiliates is aHUS Kids Japan although it hard to believe that it was formed over two years ago now. Since its first meeting the group…
Atypical HUS and School: Information about teaching & learning. Learners of any age may be affected by chronic illness or a rare disease like aHUS. What schools and employers should know about people living with atypical hemolytic uremic syndrome (aHUS)
What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.