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2020 aHUS Awareness Day

Article No. 361 24 July 2020 The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September 2020, was created by the aHUS Alliance to share…

aHUS in Deutschland

Article No. 349 14 June 2020 Die aHUS Global Action-Website hat mehrere nicht englische Artikel über aHUS aus der ganzen Welt veröffentlicht. Als einzige Gobal-Website über aHUS möchten wir mehr…

What about aHUS?

Article No. 348 10 June 2020 A few weeks ago saw an anniversary of the launch of this website. Not a big deal really. Just over four years ago a…

aHUS is….

Article No. 345 20 May 2020 COVID 19 lockdown does seem to give more time to think about things, so the question "What is aHUS?" has been pondered to fill…

Thrombotic Microangiopathy & Precision Medicine

Article No. 342 6 May 2020 Thrombotic Microangiopathy & Precision Medicine What’s to be learned from the Pandemic? At various times in history, medical science has been catapulted…

Transcript: aHUS & COVID-19 Webinar

Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…

aHUS & COVID-19: a Resource Page

As COVID-19 research, vaccines & availability, and national/regional response vary greatly by day and location, aHUS Alliance Global Action reminds you to check with your medical team for advice and…

How are you doing? (1)- Patient Reported Outcomes

Article No 326 5 March 2020 Medical research depends a lot on the collection of clinical data about patients from blood and other physical tests and measures to determine the …