Access to eculizumab

Article No. 375 6 September 2020 Earlier this year, aHUS alliance Global Action wrote to a number of contacts it has around the world. Some information was sought about access…

Continue Reading Access to eculizumab

aHUS i Norge (aHUS in Norway )

Article No 366 4 August 2020   An aHUS ROW (Rest of the World) update  :  Spotlight on aHUS Norway   There are many wonderful aHUS associations around the world…

Continue Reading aHUS i Norge (aHUS in Norway )

Global aHUS advocacy

Article No 353 27 June 2020 Participants in the creation of a Global aHUS Patients’ Vision advocated that treatment of aHUS everywhere was needed ( See article HERE ). Everywhere…

Continue Reading Global aHUS advocacy

Atypical HUS – RESOURCES

Atypical HUS - RESOURCES About aHUS - General Info Info Centre  Know aHUS:  Know US aHUS PRESS KIT Image Gallery:  Atypical HUS info & advocacy Atypical HUS 1.0 - to…

Continue Reading Atypical HUS – RESOURCES

Global Patient Advocacy-aHUS ROW

When the six European national aHUS organisations gathered in February 2013 for the first meeting of what was to become the aHUS alliance, they listed several aspirations for the new organisation.…

Continue Reading Global Patient Advocacy-aHUS ROW

The Birth of HUS(s) 65 years ago

The aHUS alliance’s mission highlights the importance of patient organisations reaching out and connecting with and supporting aHUS clinical researchers, who in turn may reciprocate. The pages of this website reflects…

Continue Reading The Birth of HUS(s) 65 years ago

aHUS Alliance Annual Report

The aHUS alliance global action is an incorporated charitable organisation registered with the Charities Commission in the UK. It has to comply with reporting rules and each year a report…

Continue Reading aHUS Alliance Annual Report