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Why is Complement “Complement” ?

It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who gave the name "Complement" to the part of the…

Thinking aHUS gets there in the end

Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than it used to be , getting a diagnosis is…

Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS

Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.

Rare Disease Day Video 2017 Reprise

The Rare Disease Day video provided an opportunity for aHUS patients around the world to voice what aHUS research was needed , and, in this unique way, brought an extensive…

aHUS Patient Care – the Need for Multidisciplinary Collaboration

Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit referral to a specialist. Presenting with a wide range…

Research & Education: Keys to aHUS Answers

Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical for diagnosis and for management of patient care. It’s…

Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA

Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the rare disease atypical hemolytic uremic syndrome, also known as…

aHUS Rare Disease Day Video 2

Like the "Rocky" films, the alliance Rare Disease Day video has a follow up version as more people from more countries have asked to be included since the video was…