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aHUS community answers the call

Article No 384 4 October 2020 On the 3 August 2020 , the aHUS alliance Global Action sent out a call to the aHUS community appealing for help from patients/carers…

aHUS at KIDNEY WEEK 2020

Article No. 382 29 September 2020 In just over three weeks it will be Kidney Week 2020. Kidney Week is the American Society of Nephrologists' (ASN) annual conference. Not surprisingly…

Awareness of aHUS Awareness Day

Article No 381 25 September 2020 To the aHUS alliance Global action aHUS Awareness Day has traditionally begun in Tuvalu in the Pacific Ocean and ending in the Midway Islands…

Atypical HUS Key Facts & Info – 2020 Sept 2021

Article No. 377 16 September 2020 Atypical HUS: Key Facts & Info Atypical Hemolytic Uremic Syndrome - an ultra Rare Disease 2019 - SEPT - 2020 What’s…

TTP and aHUS- Different diseases but still linked

Article No. 376 10 September 2020 It is not unheard of for someone with atypical Haemolytic Uremic Syndrome (aHUS) to have had an initial diagnosis of Thrombotic Thrombocytopenia Purpura (TTP). …

The aHUS diagnosis challenge

Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For a small number they may still not know what…

German aHUS patient day webinar 6/6/20

Article No. 350 18 June 2020 aHUS Global Action‘s blog about “aHUS in Deutschland” revealed an active patient support group for aHUS and MPGN patients. ( See previous article here)…

What about aHUS?

Article No. 348 10 June 2020 A few weeks ago saw an anniversary of the launch of this website. Not a big deal really. Just over four years ago a…