aHUS and COVID 19 Vaccine Update Update

Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a causual link to some blood clotting following vaccination. There…

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aHUS uncertainty is a certainty

Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab trial was published ( see copy here ). 4 more…

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Eculizumab withdrawal risk profiling

Article No. 398 4 December 2020 In its previous article "Dip into ASH 2020" Global Action highlighted research results relating to "aHUS" and "TMA" which are to be presented at…

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Dip into ASH 2020

Article No. 397 28 November 2020   The second major conference at this time of year with research results which matter to aHUS patients is the  American Society of Hematologists'…

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Atypical HUS & #Nephrology #SoMe

Harnessing the power of Nephrology Social Media – the aHUS Alliance looks back at KidneyWeek 2020 and its ability to inform & engage patient groups as well as medical professionals. How might Patient Experiences become better integrated to improve outreach and understanding for all stakeholders and initiatives?

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The aHUS Diagnosis Process

Article No 389 27 October 2020 A process is a series of steps. Diagnosis is a process. A medical diagnosis is the  process by which a persons symptoms and signs…

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Atypical HUS & World Thrombosis Day

World Thrombosis Day is held annually on 13 October to help raise awareness of causes, dangers, and risk factors for blood clot formation. Thrombosis is the formation of potentially deadly blood clots in an artery or vein. People with the rare disease atypical HUS can experience organ damage from small vessel blood clots & need to be alert to signs of thrombosis.

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