KDIGO and aHUS treatment guidelines

KDIGO stands for Kidney Disease: Improving Global Outcomes. It is a global nonprofit organization that develops and publishes clinical practice guidelines for the evaluation and management of kidney diseases. KDIGO aims to improve patient outcomes by providing evidence-based recommendations for healthcare professionals.

Every so often KDIGO focuses on aHUS and establishes a “ Controversy” Conference to look at the disease. Such a conference was held in 2015 and the latest was convened in 2022. ( I was there!)

A KDIGO Controversies Conference is an initiative which brings together experts in nephrology and related fields to discuss and address controversies and uncertainties in the management of kidney diseases. These conferences aim to provide a platform for open and constructive dialogue among experts, fostering consensus or identifying areas that require further research and investigation. The goal is to improve clinical practice by addressing unresolved issues and refining guidelines based on the latest evidence and expert insights.

The latest guidelines will be the result of the controversies conference held in Florence,Italy, in September 2022. The agreements and disagreements at meeting are documented and the outputs are turned into an article which will appear in the Kidney International Journal. That article is now eagerly anticipated.

While KDIGO guidelines are widely respected and considered authoritative, they are not strict mandates. Healthcare professionals often use them as a valuable resource to inform their clinical decisions, but individual patient circumstances and clinical judgment may lead to variations in treatment plans. Ultimately, the guidelines serve as a framework to enhance patient care rather than strict rules that must be followed in every case.

Global Action will feature the new guidelines for aHUS patients as soon as we become aware it is in the public domain. These are guidelines are for clinicians but we will do our best to present them in an understandable way for patients.

Article No. 612