A European rare kidney disease consortium is working on diagnostic tools and treatments for rare kidney diseases like aHUS.
The initiative is known as EURenOmics and more information about it can be found on its website ( click on link here)
Recently a series of videos have been released about the work of the group which can viewed at this link here.
Among the videos is one which features Marina Norris, an eminent aHUS Researcher, from Bergamo Italy . In the video she explains her role within EURenOmics , about complement related kidney diseases and aHUS in particular . Her video can be found at this link here .
Worth spending 6 minutes or so to see and listen to Marina , whether the viewer is European or from elsewhere in the world.
