Eculizumab withdrawal risk profiling
Article No. 398 4 December 2020 In its previous article "Dip into ASH 2020" Global Action highlighted research results relating to…
Dip into ASH 2020
Article No. 397 28 November 2020 The second major conference at this time of year with research results which matter…
The aHUS Diagnosis Process
Article No 389 27 October 2020 A process is a series of steps. Diagnosis is a process. A medical diagnosis is…
Is Ravulizumab affordable for aHUS?
Article 388 16 October 2020 aHUS patients envisage a treatment that is affordable for all one day. That will be a…
aHUS transplants simplified
Article No. 387 13 October 2020 This website has featured several articles* about the topic of aHUS Transplants and their need…
Atypical HUS & World Thrombosis Day
World Thrombosis Day is held annually on 13 October to help raise awareness of causes, dangers, and risk factors for blood clot formation. Thrombosis is the formation of potentially deadly blood clots in an artery or vein. People with the rare disease atypical HUS can experience organ damage from small vessel blood clots & need to be alert to signs of thrombosis.
Are Chinese aHUS Patients different?
Article No 385 7 October 2020 Apart from wanting to know how many ( prevalence of ) aHUS patients there are…
aHUS community answers the call
Article No 384 4 October 2020 On the 3 August 2020 , the aHUS alliance Global Action sent out a call…
Reflections on aHUS Awareness Day – Where Need is not Met
Article No 383 2 October 2020 aHUS Awareness Day is observed on 24th September every year. The date was picked by…
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