BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly
Article No 413 23 January 2021 Very few people have heard of BB5.1 nor even c.3643C>G; p. Arg1215Gly. Yet both are of…
aHUS Diagnosis Process tremendous response
Article No 412 21 January 2021 The 19th January 2021 has passed and the aHUS Diagnosis Process Study Questionnaire has now…
aHUS and COVID19 vaccinations
Article No. 411 16 January 2021 COVID 19 dominates healthcare throughout the world. It dominates politics. It is in the news,…
Hitting the aHUS Ground Running
Article No. 409 9 January 2021 aHUS alliance Global Action has entered the new year with global aHUS activity in full…
A day in an aHUS life
Article No. 401 11 December 2020 When it comes to those who have aHUS in their lives , everyone has some…
Withdrawal evidence patients need to know
Article No. 400 5 December 2020 Whilst on the topic of safe withdrawal from eculizumab treatment ( see previous articles 398…
“StopEcu” – the French Study reports
Article No. 399 4 December 2020 Just as the previous blog (No. 398) on the same topic was being written and…
Eculizumab withdrawal risk profiling
Article No. 398 4 December 2020 In its previous article "Dip into ASH 2020" Global Action highlighted research results relating to…
Dip into ASH 2020
Article No. 397 28 November 2020 The second major conference at this time of year with research results which matter…
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