Atypical HUS CAREGIVERS
Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…
TMA: the Need for a Multidisciplinary Team Approach
Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…
aHUS Diagnosis Process-First Report
The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…
Tweet challenge for aHUS awareness
Research has shown that around 2 million tweets are made on Twitter each day. They are shared by around 600 thousand…
2021 FAQs – FACTS about Atypical HUS
aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…
The light and dark world of aHUS
Article No. 453 25 August 2021 Recently Astra Zeneca concluded its purchase of the rare disease business unit, Alexion. $39 billion…
A harrowing aHUS tale
Article No. 449 28 July 2021 It is five years on since the article below about a little girl in India…
What became of the aHUS 130?
Article No. 446 14 July 2021 Eculizumab effectiveness and safety in the treatment of aHUS was established in five clinical trials…
Questioning seldom heard aHUS answers
Article No. 440 11 June 2021 Sometimes aHUS alliances Global Action sees things written about aHUS on the internet which are …
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