aHUS Project for 2022 Rare Disease Day
Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.
Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.
Reaching out to Bridge Current Gaps As complement research has progressed and more is understood about thrombotic microangiopathy, it’s interesting that…
Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…
Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…
The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…
Research has shown that around 2 million tweets are made on Twitter each day. They are shared by around 600 thousand…
aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…
Article No. 453 25 August 2021 Recently Astra Zeneca concluded its purchase of the rare disease business unit, Alexion. $39 billion…
Article No. 449 28 July 2021 It is five years on since the article below about a little girl in India…