COVID Infection and vaccination and aHUS.
It was anticipated at the beginning of the pandemic that COVID would be a trigger of aHUS. Global Action postulated it…
2024 Global aHUS Poll Launches
2024 survey launched to explore atypical HUS patient experiences around the world.
An eculizumab biosimilar for the USA
Global Action has received this notice from the FDA. We cannot find a price or evidence from an aHUS trial as…
Poems for aHUS,
While sorting out some papers recently I came across a poem an aHUS patient sent me about living with dialysis. This…
Topics in aHUS Global Advocacy: Oct 2023
Keeping current with advancements in atypical HUS knowledge is important for patient families as well as clinicians, but that’s no small…
SHUa ao redor do mundo: Brasil
Temos o prazer de oferecer mais uma em nossa série de “SHUa ao redor do mundo”, onde apresentamos as notícias e…
Why aHUS for them not me?
Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…
Lessons about aHUS Patient Advocacy
In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…
aHUS meningococcal infection – vigilance essential
All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course,…