The epilogue
I set out in this series of blogs to not only tell the tale of a Reluctant Advocate , but also…
RIP aHUSUK 2011-2016
The reluctant advocate story nears its end aHUSUK had been created to support existing aHUS patients and those in the future…
aHUS alliance collaborates -the website starts
More from the Reluctant Advocate. International collaboration was beginning to pick up considerably after the 2015 London meeting of affiliates. At…
CardioRenal Syndrome: The Relationship of Heart & Kidney Health
CardioRenal Syndrome: The Relationship between Heart & Kidney Function. Cardiorenal syndrome describes the group of medical characteristics (syndrome) which coexist between heart (cardio) and kidney function (renal). When either the kidneys or heart are not fulfilling their vital tasks, there can be a harmful and two-way interaction where decline in one of these major organs can seriously undermine function of the other. Does current patient education include these key points about CRS?
aHUS Fatigue it matters to aHUS patients
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
The first aHUS awareness day
More about the Reluctant Advocate. The alliance had agreed to have the First aHUS Awareness Day on 24th September 2015. The…
For aHUS -Good will come together
The third aHUS alliance affiliates meeting was held on 28 June 2015 , the day after the second UK aHUS…
From aHUS conference attendee to presenter
The journey of the Reluctant Advocate moves along in 2015. Just after the Paris meeting of the alliance I was contacted…
YOU ARE NOT ALONE, WE CAN FIND A WAY
Along with the simple messages "you are not alone" and "we can find a way" on Rare Disease Day 2019 The Global aHUS…