aHUS Patient Centricity
Article No. 298 18 November 2019 A change is coming in the relationship between patients/ patient organisations and Pharma. This change…
Where and what next?
Article No. 297 15 November 2019 There is a saying in “management theory” that in the development of a…
Difference In differences
Article No. 295 9 November 2019 Genetics are important when it comes to aHUS. Yet genetics does not feature in the…
aHUS genetic counselling-evidence based
Some new aHUS Research* was presented at the recent meeting of the International Pediatric Nephrology Association in Venice. A talk by…
Complement database leader interview
Professor Stephen Perkins began his research career having studied Chemistry and Molecular Biophysics at Oxford University as well as undertaking Research…
A well of aHUS mutations
aHUS patients raised the question “ are the predisposing genetic factors of aHUS fully catalogued?” as a topic of research which…
OLYMPUS DIGITAL CAMERA
Fatal non attraction for aHUS
Everyone has heard of magnetism. It is a physical force that attracts two objects together. It surrounds us, The earth is…
A little aHUS Awareness means a lot
As the world slips into September 25th, another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best…
Historical branches-aHUS in the Family
aHUS is known as a family illness. It was seen as something different from HUS when different family members experienced it…
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