Some new ERKNet News
Article No. 310 16 January 2020 The alliance has featured ERKNet in several news articles in recent years. ( Note :…
Not the one and only in 2020
Article No. 309 10 January 2020 At the end of next month it will be Rare Disease Day 2020. ”So what!?”…
Transitioning Teens to Adult Nephrology Care
As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting - what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.
An aHUS tale from Slovakia
Article No. 304 12 December 2019 The alliance received a copy of an aHUS story from Slovakia. There are are unlikely…
aHUS is its end really nigh? (3)
Article No. 303 11 December 2019 It has taken nearly a century for aHUS nomenclature to reach the level acceptance, application…
Rare Disease Day: Atypical HUS in 2020
Article No. 302 7 December 2019 Rare Disease Day Looking Ahead: What Atypical HUS Community Sees for 2020 …
aHUS Expert Centre- what makes it so
Article No. 301 5 December 2019 Within the six pillars of support for those with rare diseases is a…
aHUS is its end really nigh? (2)
Article No 300 4 December 2019 In Part 1 the 95 year journey for aHUS to become in common use…
aHUS is its end really nigh? (Part 1)
Article No. 299 1 December 2019 Currently some challenge is taking place on the terms used to describe diseases in which…
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