That aHUS transplant question
Article No. 330 8 March 2020 Although it is becoming less of an issue for many these days because the…
How are you doing?(4)-PRO data in use
Article No. 329 5 March 2020 In the previous parts of this series "How are you doing?" the importance of PRO…
How are you doing?(3)-Improving PRO reporting
Article No. 328 5 March 2020 In Part1 of "How are you doing?" the importance of PRO reports was explained as…
How are you doing? (2)- PRO reporting in practice
Article No. 327 5 March 2020 In the first part of the "How are you doing?" series about the important role…
How are you doing? (1)- Patient Reported Outcomes
Article No 326 5 March 2020 Medical research depends a lot on the collection of clinical data about patients from blood…
A global patient vision for aHUS?
Article No. 325 29 February 2020 20/20 vision is about clarity of sight. Perfect vision. It’s a measure and is not…
Rare in 1.4 billion people
Article No 324 26 February 2020 Like many medical institutions around the world this week The Lancet (Haematology) ,an offshoot of…
aHUS genetics- the basics
Article No. 322 21 February 2020 One thing is plainly clear, for most people genetics is a difficult and complex science.…
aHUS- some do some don’t
Article No. 321 20 February 2020 Recalling a couple of questions in the 2017 Rare Diseases Day video about something that…
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