aHUS & COVID-19: WEBINAR 24 March 2020
Article No. 334 21 March 2020 The aHUS Alliance wishes to alert atypical HUS patients and family caregivers to the…
aHUS and COVID-19
Article No. 333 18 March 2020 The reaction to aHUS Global Action’s two blogs about aHUS and COVID-19 has been truly…
They “get it ” when they can get it.
Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a…
That aHUS transplant question
Article No. 330 8 March 2020 Although it is becoming less of an issue for many these days because the…
How are you doing?(4)-PRO data in use
Article No. 329 5 March 2020 In the previous parts of this series "How are you doing?" the importance of PRO…
How are you doing?(3)-Improving PRO reporting
Article No. 328 5 March 2020 In Part1 of "How are you doing?" the importance of PRO reports was explained as…
How are you doing? (2)- PRO reporting in practice
Article No. 327 5 March 2020 In the first part of the "How are you doing?" series about the important role…
How are you doing? (1)- Patient Reported Outcomes
Article No 326 5 March 2020 Medical research depends a lot on the collection of clinical data about patients from blood…
A global patient vision for aHUS?
Article No. 325 29 February 2020 20/20 vision is about clarity of sight. Perfect vision. It’s a measure and is not…
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