FDA has a record about aHUS
In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…
In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…
Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2025aHUS The background to the video is…
As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…
There are now licensed biosimilars to eculizumab available in Europe and also in the USA ( see previous article and further…
More data about the time of year for aHUS was collected in the recent aHUS Global Poll to add to that…
Every year since the first aHUS Awareness Day on 24 Sept 2015 we’ve attempted to shine a spotlight on atypical HUS…
Nearly five years ago Global Action asked the question “ Is aHUS’s end nigh ?” In a trilogy of articles. (…
It was anticipated at the beginning of the pandemic that COVID would be a trigger of aHUS. Global Action postulated it…
2024 survey launched to explore atypical HUS patient experiences around the world.