Some aHUS awareness for FDA today
Something different has been tried this year to raise awareness of aHUS. It involved the Food & Drugs Administration , the…
aHUS awareness day #9 – images of past days.
It is hard to believe that it is nine years since aHUS alliance came up with the first aHUS Awareness Day…
aHUS patient websites
Currently the aHUS patient website belonging to the atypical HUS Foundation, www.aHUS.org is “ under construction” ,or being reconstructed, so it…
Micro clots in Long aHUS and COVID
It hard to believe that three years have passed since COVID consumed our lives. Although it was a respiratory disease from…
USA
GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT
Are there 3000 aHUS patients in the USA
Health care and better estimating lead us to believe there are approaching 3000 aHUS patients in the USA who have survived…
Is it time to have aHUS
Anyone who can get aHUS can get it any time. That makes sense the disease is just the product of a…
Before aHUS endeavours fade
There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…
The aHUS Global Advocate Newsletter: 7th Edition
Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important…
Global aHUS at the Baltimore Conference
Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…