An article entitled "An innovative and collaborative partnership between patients with rare disease and industry-supported registries: the Global aHUS Registry" has appeared in the Orphanet Journal…
A key outcome from conferences like Kidney Week in Chicago ( American Society of Nephrologists.) is the sharing of knowledge from…
The American Society of Nephrologists meeting is due to be held on 15 to 20th of November in Chicago. aHUS alliance…
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
Current options for kidney failure quite onerous for patients Survival rates not good enough with these treatments Newer options like WAK…
aHUS, or atypical Hemolytic Uremic Syndrome, is what is known to be the illness that affects a very few patients around…
aHUSUK has been the UK’s advocacy organisation for aHUS since September 2011. A registered charity in England Wales and Scotland it,…
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…
Patients both desire and need to be involved at every level of their healthcare. Within the last decade there’s…