A cure for aHUS?
There is another very good question from Hyde Talbot of Cumming Georgia in the video ( click here to view…
THE aHUS PATIENT RESEARCH AGENDA 2017
The Rare Disease Day video, which was the latest collaboration project of the aHUS alliance, and in which 75 aHUS adults…
Just how many aHUS patients are there?
Rare Disease Day 2017 is over , the aHUS Global Video ( see here) was a tremendous success and, as has…
From Russia : Research and Cure!
Today the world will be celebrating the 10th edition of Rare Disease Day. This time, the event's main topic is "Research".…
The aHUS Global Video on Rare Disease Day 2017
It is Rare Disease Day 2017 . The video that the global aHUS community has been contributing to has been released…
The sum of aHUS Research provides better patient outcomes.
aHUS Research is important to the aHUS alliance. In a newsletter from i -ORD , the Indian Organisation for Rare Disease,…
AHUS alliance four years on from Barcelona
On 16 February 2013 representatives from six European aHUS patient organisations met in Barcelona and decided to create an aHUS alliance…
A Rare One – aHUS Certainly is! But you are not alone…
Here is one from the archives. A song specially written for Rare Disease Day 2012 as part of aHUS community contribution…
(archived 2019) -aHUS Alliance – Press Kit
Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public. Whether…
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