Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the…
Challenge of Secondary aHUS diagnosis
A question ,which featured in the Rare Diseases Day video, will have resonated with many aHUS families as it was about…
Hope for aHUS in India?
Tomorrow, and the day after, a significant event is taking place in New Dehli which is of great importance to aHUS Patients…
Things can get better
Most who have had an encounter with aHUS will be familiar with the anxiety and uncertainty felt by Deborah in her…
Parents Want to Know about aHUS Childrens’ Issues
Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children. Despite…
aHUS Rare Disease Day Video 2
Like the "Rocky" films, the alliance Rare Disease Day video has a follow up version as more people from more countries…
Can eculizumab be stopped?
For many thousands of aHUS patients around the world just getting access to eculizumab is the most pressing issue; but, increasingly,…
Long term side effects of treatment
Other questions featured in the Rare Disease Day video about the aHUS treatment eculizumab, relate to side effects from infusions of…
Allergy and Immunogenicity Revisited
After the pause in answering the Rare Disease Day video questions to consolidate them into the aHUS Patients Research Agenda; and…
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