An Interim aHUS Patients Research Agenda
It is a year since an Orphanet Journal of Rare Disease article was published about a patients aHUS research agenda and…
100 days to Rare Disease Day 2018
aHUS is rarer than rare In patient advocacy for rare diseases like aHUS there seems to be a background cycle to…
All for one , one for all
aHUS is a savage and cruel illness that kills and maims people. This is something that those who have experienced it,…
ASN studies address aHUS Research Agenda
Once again, the American Society of Nephrology’s (ASN) Kidney Week adds considerably to the knowledge of kidney disease in all its…
Conference News & Info – Nov & Dec 2017
What news might be of interest to aHUS stakeholders these last 2 months of 2017? Advancements in research and…
aHUS Trials Watch 3
In the aHUS Trials Watch 2 blog ( see here) news about a trial of a new complement inhibitor Cemdisiran using…
TMA 65 YEARS OLD TODAY
It was 65 years ago to day that Prof Symmers taught the world to say TMA. Prof Symmers, or Professor William…
Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
International Nephrology Conference in BUCHAREST, Romania 17 & 18 Nov 2017 In the 1st conference of this type…
aHUS “How To” – Find Atypical HUS Research
It can be a struggle to find information about medical conditions if you’ve been diagnosed with a rare disease, and…
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