Atypical HUS Fact Sheets (released Sept 2018) provide aHUS -specific research and info about the rare disease atypical Hemolytic Uremic Syndrome or aHUS. Available in 2 formats: an 'In Brief' print friendly pdf, and a full length version (17 page) with links to current atypical HUS research (with citations) and key topics of interest to physicians, aHUS patients, and their families.
In an update about the aHUS Registry earlier this year the alliance reported that Alexion had cut back its investment in…
(* Part 1 and Part 2 click here) Now where is my tutu? With the family moto “Non Offeres” ( “Never…
Len Woodward was a founding Trustee of aHUSUK and a founding affiliate of the aHUS Alliance. He is also a Director…
Dr Errol Gottlich and Professor Mignon McCulloch Resilience, fortitude and determination. These characteristics describe the South African doctor treating patients within a complex and changing…
In this series of blogs Len Woodward explains and describes how he became an aHUS advocate and where the journey has…
Everything that the aHUS alliance does and writes about relates to the "Rare Disease 6". The Rare Disease 6 are the…
Drug Discovery and Market Factors within the Atypical HUS Arena E: info@aHUSallianceAction.org The aHUS Alliance is an international group of…
aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance Atypical HUS is difficult…