And keep those plates spinning while you are at it
The reluctant advocate’s journey continues, ( click here for the story so far). Our NICE evidence was submitted on 9 September…
Research that matters to aHUS patients at ASH
The American Society of Haematology hosts its annual conference in San Diego from 30th November to 4th December 2018 . A…
News from Japan
One of the newest alliance affiliates is aHUS Kids Japan although it hard to believe that it was formed over two…
SHARE CARE CURE “ Good will come together”
A meeting of the aHUS alliance is always an opportunity to learn and share news with the aHUS patient community globally.…
Atypical HUS in the Netherlands
Atypical HUS in the Netherlands - An aHUS Alliance interview with the Dutch research and clinical teams at Radboudumc, to include the broad importance of their CUREiHUS study and its potential impact for patients and physicians world wide.
ERKNet webinar on aHUS
Another webinar by ERKNet of interest to the aHUS community was held today. It was to be given by Dr Giuseppe…
NICE process begins it will soon be Christmas
In April 2013 we heard that NICE would not get to the evaluating and decision step until December 2013 , which…
aHUS Conference “The Dutch Approach”
The Dutch aHUS patients' conference is being held in Nimegen and the participants are gathering at the Fletcher Park Hotel Val…
One step at a time
For the Reluctant Advocate story so far click here NICE was not ready to begin its work on eculizumab when it…
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