Featured Archives - Page 26 of 50 - aHUS Alliance Action

The right choice -Pregnancy and aHUS

Post author:ahusalliance
Post published:October 5, 2019
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It is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies.…

aHUS Day 2019

Post author:ahusalliance
Post published:September 29, 2019
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2019 aHUS Awareness Day, an overview of the 5th annual 24 Sept campaign to raise awareness for the ultra rare disease atypical HUS.

Awareness of the aHUS Family

Post author:ahusalliance
Post published:September 24, 2019
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Families are important . Families are important to those affected by aHUS. aHUS is a familial Disease. Families are important for…

Alexion holds Blood Drive for aHUS Day 2019

Post author:ahusalliance
Post published:September 22, 2019
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Alexion Pharmaceuticals holds corporate blood donation drive to mark aHUS Awareness Day, 24 Sept 2019.

aHUS at the Cleveland Rare Genetic Disease Symposium

Post author:ahusalliance
Post published:September 17, 2019
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Cleveland Clinic Children's held its Rare Genetic Disease Symposium on 12 Sept 2019, with 3 aHUS-specific presentations to include the aHUS Alliance on the topic of 'The Patients' Perspective'.

aHUS Registry Report : RaDaR

Post author:ahusalliance
Post published:September 11, 2019
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Patient Registries are important for those with rare diseases. aHUS is served by several Registries. None are perfect either because of…

2019 Atypical HUS Fact Sheets

Post author:ahusalliance
Post published:September 8, 2019
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Atypical HUS: Fact Sheets & Research (2019 - SEPT - 2020 Edition) The aHUS Alliance provides informational resources about this rare disease for aHUS families & advocates around the world. Highlight boxes of aHUS research from the past year are provided in the full version, Key Facts and Research. The 'aHUS: In Brief 2019' version is a single page of aHUS facts to Print & Share.