Mental Health & COVID-19
Article No. 338 10 April 2020 Mental Health admist COVID-19 In challenging times, circumstances may find you feeling…
aHUS Registry: SAB Summary for Dec 2019
Article No. 337 2 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical…
Atypical HUS & COVID-19
Article No 336 30 March 2020 Atypical HUS & COVID-19 Resources for the global aHUS Community The aHUS…
aHUS TRIALS WATCH 10
Article No. 331 8 March 2020 During his talk about potential complement inhibitors, Dr Richard Smith mentioned a ClinicalTrials.gov clinical trial…
Spotlight on Ravulizumab 5- Affordable?
Article No 323 23 February 2020 Although precautions are needed in its use, there is evidence that Ravulizumab, like its predecessor…
The study of genetics and aHUS
Article No. 319 14 February 2020 The study of genetics really began over 150 years ago when an Augustine Monk called…
Transitioning Teens to Adult Nephrology Care
As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting - what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.
aHUS project for Rare Disease Day 2020
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
2019 more answers to questions
Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or in related components in your blood…
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