Featured Archives - Page 22 of 50 - aHUS Alliance Action

Dip into ASH 2020

Post author:ahusalliance
Post published:November 28, 2020
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Article No. 397 28 November 2020 The second major conference at this time of year with research results which matter…

Atypical HUS: Not Like the Others

Post author:Linda Burke
Post published:November 26, 2020
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Patient involvement needs to be integrated across all areas of research and at early stages of planning clinical trials. When patient engagement is in the atypical HUS arena, what considerations make outreach a bit different for advocacy regarding this ultra rare disease?

Help needed to join the aHUS dots

Post author:ahusalliance
Post published:November 25, 2020
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Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…

Ravulizumab costs less over a life time

Post author:ahusalliance
Post published:November 23, 2020
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Article No 394 23 November 2020 In an article on 16 October 2020 (No 388) aHUS Global Action derived a cost…

Atypical HUS & #Nephrology #SoMe

Post author:ahusalliance
Post published:November 15, 2020
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Harnessing the power of Nephrology Social Media - the aHUS Alliance looks back at KidneyWeek 2020 and its ability to inform & engage patient groups as well as medical professionals. How might Patient Experiences become better integrated to improve outreach and understanding for all stakeholders and initiatives?

Advancements in mRNA – an approach to COVID-19 Vaccines

Post author:Linda Burke
Post published:November 9, 2020
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Pfizer and BioNTech press release 9 Nov 2020 announced positive announcement for their COVID-19 vaccine candidate. In the rapidly changing pandemic landscape, the aHUS Alliance provides compiled info & resources for background on mRNA and its potential approach to prevent disease.

IPNA WebMaster for Nov 7th: Focus on HUS

Post author:ahusalliance
Post published:November 3, 2020
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Join in this 7 November 2020 IPNA endorsed webinar on HUS, number 17 in the IPNA Web Master series. Pediatricians as well as adult & pediatric nephrologists are invited to deep dive into the topic presented by Dr Sidharth Kumar Sethi - HUS: Newer Developments in Pathology & Treatment.