Update: aHUS Diagnosis Process Study
Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…
aHUS Relapse: Expect the Unexpected
Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.
Being An aHUS Trialist
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
Atypical HUS Relapse – A Family View
Article No. 418 9 February 2021 Our family has been through life-threatening episodes of atypical HUS before, so you’d think that…
aHUS in pregnancy and after
Article No 410 13 January 2021 The link between pregnancy and aHUS has been known for several decades. A chapter was…
aHUS Better- it depends and takes time
Article No. 408 7 January 2021 An aHUS onset is an anxious and exhausting event. It may have bubbled under unnoticed…
Global aHUS Action for 2021 Rare Disease Day
aHUS Alliance Global Action, update - On 28 February 2021 our slideshow launched, featuring 107 very special people from…
aHUS in 2020
Article No. 406 22 December 2020 As the year is drawing to a close and the holidays are fast approaching, it…
Eculizumab withdrawal- safe and reasonable?
Article No. 405 20 December 2020 In the past month there has been a spate of articles on the topic of…
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