UNITED ARAB EMIRATES
England recommends Ravulizumab for aHUS
Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then…
Scotland Approves Ravulizumab for aHUS
Article No. 434 10 May 2021 The Scottish Medicines Consortium (SMC) has approved the use of Ravulizumab for treating aHUS in…
aHUS-Interpretation is Complex
Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new…
aHUS Trial Watch 12 (crovalimab update)
Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…
Atypical HUS & the Teen Years
Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.
Charmed Moments
Atypical HUS families may not live ‘charmed lives’ - but those affected by this rare disease can deliberately choose to create small ‘Charmed Moments’ each day. Given the uncertainties aHUS brings to our patients and their families, a look at cultivating actions and selecting choices to react to life’s circumstances and aHUS realities.
Experiencing aHUS – Viewpoints & Variations
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…
aHUS uncertainty is a certainty
Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…
aHUS Relapse: The Ties that Bind
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
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