Featured Archives - Page 18 of 48 - aHUS Alliance Action

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Eculizumab aHUS treatment: PESaM

Post author:ahusalliance
Post published:May 22, 2021
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Article No. 436 21 May 2021 It is amazing sometimes what you can find on the internet when searching for…

UNITED ARAB EMIRATES

England recommends Ravulizumab for aHUS

Post author:ahusalliance
Post published:May 20, 2021
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Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then…

Scotland Approves Ravulizumab for aHUS

Post author:ahusalliance
Post published:May 10, 2021
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Article No. 434 10 May 2021 The Scottish Medicines Consortium (SMC) has approved the use of Ravulizumab for treating aHUS in…

aHUS-Interpretation is Complex

Post author:ahusalliance
Post published:May 9, 2021
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Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new…

aHUS Trial Watch 12 (crovalimab update)

Post author:ahusalliance
Post published:May 7, 2021
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Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…

Atypical HUS & the Teen Years

Post author:Linda Burke
Post published:April 21, 2021
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Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.

Charmed Moments

Post author:Linda Burke
Post published:April 8, 2021
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Atypical HUS families may not live ‘charmed lives’ - but those affected by this rare disease can deliberately choose to create small ‘Charmed Moments’ each day. Given the uncertainties aHUS brings to our patients and their families, a look at cultivating actions and selecting choices to react to life’s circumstances and aHUS realities.