Are there alternative aHUS drugs and ways to deliver them?
A top topic if the number of questions relating to this issue in the RDD2022 Video are to go by. Drug…
When to transition from eculizumab to ravulizumab
Ravulizumab is eculizumab, Carsten. They work the same way. It is the same monoclonal antibody. It has just been modified in…
Will there be a cure for aHUS one day?
Answers to the RDD2022 video continue. Samantha asks will there ever be a cure for aHUS? Crikey that is a difficult…
Can a kidney transplant cure aHUS?
A kidney transplant used to be contraindicated for those predisposed to aHUS. Although it could have been successful for some depending…
Atypical HUS PROs: Patient Reported Outcomes
What are patient reported outcomes (PROS)? The aHUS Alliance Global Action team look at PROs and their importance in the aHUS space.
Long term aHUS effects
Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research…
What would stop eculizumab working for aHUS?
Eculizumab was approved by the US Food and Drugs Administration for PNH for 15 years ago on 16 March. This September…
Can aHUS treatment be affordable for all?
A very important topic for many aHUS patients around the world with an unmet need. Patients have included the topic in…
What does an aHUS patient look like
Let us kick off the responses to the RDD2022 Video with a couple of questions about the characteristics of aHUS patients.…
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