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Read more about the article Maternal Fetal Medicine: Collaborative Partnerships in TMA Care

Maternal Fetal Medicine: Collaborative Partnerships in TMA Care

  • Post author:Linda Burke
  • Post published:October 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some…

Continue ReadingMaternal Fetal Medicine: Collaborative Partnerships in TMA Care
Read more about the article Atypical HUS Facts:  2022 – Sept –  2023

Atypical HUS Facts:  2022 – Sept –  2023

  • Post author:Linda Burke
  • Post published:September 19, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Fact Sheet: 2022 Sept 2023

Continue ReadingAtypical HUS Facts:  2022 – Sept –  2023
Read more about the article The ethics of aHUS treatment trials

The ethics of aHUS treatment trials

  • Post author:Len Woodward
  • Post published:September 15, 2022
  • Post category:Featured
  • Post comments:0 Comments

When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…

Continue ReadingThe ethics of aHUS treatment trials
Read more about the article aHUS Drug Candidates – the 2022 Landscape

aHUS Drug Candidates – the 2022 Landscape

  • Post author:Linda Burke
  • Post published:September 13, 2022
  • Post category:Featured
  • Post comments:0 Comments

What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new…

Continue ReadingaHUS Drug Candidates – the 2022 Landscape
Read more about the article Topics in aHUS Research – Sept 2022

Topics in aHUS Research – Sept 2022

  • Post author:Linda Burke
  • Post published:September 7, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…

Continue ReadingTopics in aHUS Research – Sept 2022
Read more about the article Atypical HUS in Portugal

Atypical HUS in Portugal

  • Post author:Linda Burke
  • Post published:September 5, 2022
  • Post category:Featured
  • Post comments:0 Comments

We’re very pleased to offer this second in our series of ‘aHUS around the World’ where we feature the news and…

Continue ReadingAtypical HUS in Portugal
Read more about the article aHUS in New Zealand

aHUS in New Zealand

  • Post author:Linda Burke
  • Post published:August 24, 2022
  • Post category:Featured
  • Post comments:0 Comments

We're so pleased to highlight atypical HUS in New Zealand, with this article written by aHUS family caregiver Anna Benson. No…

Continue ReadingaHUS in New Zealand
Read more about the article Does this genetic variant cause aHUS- Yes or No?

Does this genetic variant cause aHUS- Yes or No?

  • Post author:Len Woodward
  • Post published:August 22, 2022
  • Post category:Featured
  • Post comments:0 Comments

Are the predisposing genetic and triggering factors of aHUS fully catalogued and understood and will it help to know how variable…

Continue ReadingDoes this genetic variant cause aHUS- Yes or No?
Read more about the article aHUS Patient Meeting Aug 2022 – USTMA

aHUS Patient Meeting Aug 2022 – USTMA

  • Post author:Linda Burke
  • Post published:August 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held…

Continue ReadingaHUS Patient Meeting Aug 2022 – USTMA
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