aHUS Patient Meeting Aug 2022 – USTMA
Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held…
Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held…
What’s involved in aHUS genetic testing, and are all labs alike? The answer to the first is quite complex, and no…
We’re pleased to feature this interview with Dr Brad Lewis, Medical Director of Machaon Diagnostics. A hematologist with background in biochemistry…
65 questions, 29 article blogs with answers to the questions published between 7 March and 16 May and over 300 views…
A final question in the RDD2022 video series on how to integrate a patient voice of experience into aHUS Pharma and…
This question about difference in disease triggers and treatments from Jeff did not feature in the RDD2022 video but was given…
A number of questions in the RDD2022 video are about what will happen to patients in the future due to the…
The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…
Zinovieva asked two related questions in the RDD 2020 video The issues of what provokes ( or triggers) the development of…