Informed about aHUS Patient Involvement
Involving patients in clinical studies design and conduct is ethical (Article 575). Involving patients as subjects of that study is ethically…
Mental Wellness: Insights & Resources
Mental Health: Types of Therapy | Ways to Nurture Mental Wellness | Mental Health Toolkit & Resources It’s a casual…
Silver Lining: from aHUS Diagnosis to Dialysis Centre Entrepreneur
We’re excited to announce the release of this new book: Silver Lining: Overcoming Adversity to Build NephroPlus- India’s Largest Dialysis Provider …
4th Edition of Indian Dialysis Olympiad held in New Delhi, India
Who said dialysis patients cannot play a sport? Given good quality dialysis, dialysis patients can do everything that people with healthy…
What’s New in aHUS Research – April 2023
It’s exciting to report that in the first months of 2023 there’s been a raft of new publications which are important…
The ethics of aHUS patient involvement.
Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…
TURKEY: Association of the Fight against PNH and aHUS Diseases
We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği. …
RDD23 VIDEO – RESULTS REPORT
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…
Is incidence of aHUS really “2 per million”?
I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…
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