Atypical HUS families may not live ‘charmed lives’ - but those affected by this rare disease can deliberately choose to create small ‘Charmed Moments’ each day. Given the uncertainties aHUS brings to our patients and their families, a look at cultivating actions and selecting choices to react to life’s circumstances and aHUS realities.
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
What's new in atypical HUS Research & Publications? aHUS Alliance Global Action - Keeping you updated with new aHUS research as of December 2020.
Patient involvement needs to be integrated across all areas of research and at early stages of planning clinical trials. When patient engagement is in the atypical HUS arena, what considerations make outreach a bit different for advocacy regarding this ultra rare disease?
Pfizer and BioNTech press release 9 Nov 2020 announced positive announcement for their COVID-19 vaccine candidate. In the rapidly changing pandemic landscape, the aHUS Alliance provides compiled info & resources for background on mRNA and its potential approach to prevent disease.
Drug Discovery and Market Factors within the Atypical HUS Arena E: info@aHUSallianceAction.org The aHUS Alliance is an international group of…