Newsletter: aHUS Global Advocate, 9th Edition
The aHUS Global Advocate Newsletter, highlights of news & views with a focus on the rare disease atypical HUS. Our 9th Edition, March 2024
aHUS Project for 2024 Rare Disease Day
Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2024aHUS While Rare Disease Day is marked…
Learn with USTMA – aHUS Videos
The United States Thrombotic Microangiopathy (USTMA) Consortium was formed in 2014 as a collaborative initiative to organize research efforts in the…
TED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience
What image comes to your mind when you hear the words ‘dialysis patient’? Most likely it’s not what you’ll see and…
aHUS Global Advocate Newsletter: Nov 2023
Keep up to date with the aHUS Global Advocate newsletter, Volume 8 edition for November 2023. FMI: Learn how to obtain your free subscription.
Algorithms: Steps to Diagnose aHUS & other TMAs
Algorithms to diagnose aHUS apart from other syndromes of TMA exist, but why do these tools with problem solving steps seem under-utilized?
Topics in aHUS Global Advocacy: Oct 2023
Keeping current with advancements in atypical HUS knowledge is important for patient families as well as clinicians, but that’s no small…
Atypical HUS Research: What’s New for Sept 2023?
Atypical HUS research highlights for Sept 2023 - additions to our aHUS-specific research library