What does an aHUS patient look like
Let us kick off the responses to the RDD2022 Video with a couple of questions about the characteristics of aHUS patients.…
Rare Disease Day 2022 aHUS Questions
When Jeff, the producer of these awareness day videos, suggested that "questions" should be the theme of this years' RDD Video…
COVID TRIGGERS aHUS
It was March 2020 and COVID appears on www.ahusallianceaction.org for first time with a question: Can the coronavirus trigger an infection…
YOU’VE GOT aHUS!
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
LONG aHUS
aHUS alliance Global Action has previously brought up the concept of "Long aHUS " in its articles during the COVID pandemic.…
aHUS Trial Watch 15 (Iptacopan)
Iptacopan is a complement inhibitor that it is taken orally, twice daily. It works by inhibiting Complement Factor B (CFB ).…
aHUS are we there yet?
Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…
Advocacy punching above its aHUS weight
There is so much chat these days about what things should be like after the pandemic. Though it does seem at…
TÜRKİYE’DE Kİ; aHÜS H; ASTALIĞINA GENEL BİR BAKIŞ!
Atipik Hemolitik Üremik Sendrom kısaca aHÜS, vücudumuzun bağışıklık sisteminin ana elemanlarından olan ana savunma sisteminin de ki bir parçanın regülasyon bozukluğu…