When to transition from eculizumab to ravulizumab
Ravulizumab is eculizumab, Carsten. They work the same way. It is the same monoclonal antibody. It has just been modified in…
Will there be a cure for aHUS one day?
Answers to the RDD2022 video continue. Samantha asks will there ever be a cure for aHUS? Crikey that is a difficult…
Can a kidney transplant cure aHUS?
A kidney transplant used to be contraindicated for those predisposed to aHUS. Although it could have been successful for some depending…
Long term aHUS effects
Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research…
What would stop eculizumab working for aHUS?
Eculizumab was approved by the US Food and Drugs Administration for PNH for 15 years ago on 16 March. This September…
Can aHUS treatment be affordable for all?
A very important topic for many aHUS patients around the world with an unmet need. Patients have included the topic in…
What does an aHUS patient look like
Let us kick off the responses to the RDD2022 Video with a couple of questions about the characteristics of aHUS patients.…
Rare Disease Day 2022 aHUS Questions
When Jeff, the producer of these awareness day videos, suggested that "questions" should be the theme of this years' RDD Video…
COVID TRIGGERS aHUS
It was March 2020 and COVID appears on www.ahusallianceaction.org for first time with a question: Can the coronavirus trigger an infection…