Monitoring after Eculizumab withdrawal
This article marks the 500th website news “blog” since it went live nearly six years ago. That milestone is marked by…
Hormones and aHUS
Questions about hormones and aHUS in the RDD2022 video. It is a feature of aHUS that it becomes more common in…
aHUS remission chance and relapse risk
Remission from aHUS is different from having been cured because there is still an uncertainty that aHUS can return. If that…
Autoantibodies cause aHUS
Another question from the RDD2022 video. This one from Harry in Hartlepool UK. This one is about anti factor h autoantibodies.…
Are there alternative aHUS drugs and ways to deliver them?
A top topic if the number of questions relating to this issue in the RDD2022 Video are to go by. Drug…
When to transition from eculizumab to ravulizumab
Ravulizumab is eculizumab, Carsten. They work the same way. It is the same monoclonal antibody. It has just been modified in…
Will there be a cure for aHUS one day?
Answers to the RDD2022 video continue. Samantha asks will there ever be a cure for aHUS? Crikey that is a difficult…
Can a kidney transplant cure aHUS?
A kidney transplant used to be contraindicated for those predisposed to aHUS. Although it could have been successful for some depending…
Long term aHUS effects
Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research…