aHUS Patients’ Qualities -Together
aHUS patients are people. People are different. But only aHUS people have had aHUS. It is something they share together. As…
The ethics of aHUS treatment trials
When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…
*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…
Does this genetic variant cause aHUS- Yes or No?
Are the predisposing genetic and triggering factors of aHUS fully catalogued and understood and will it help to know how variable…
TMAs and aHUS illustrated
Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group…
KDIGO – aHUS controversies and consensus
Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving…
Trial watch 16 -Factor D complement inhibitor.
One of the ways to find out which drugs have a potential for aHUS treatment is to look at trials for…
aHUS Trial Watch 15 ( Iptacopan) update
Global Action featured a new trial for an aHUS treatment iptacopan earlier this year ( CLICK ON IMAGE BELOW) aHUS Trial…
Panoramic view of vittà alta. Bergamo - Italy
Bergamo- A Report on aHUS
11am 23 June 2022, Bergamo,Italy: The long awaited ISN Frontiers meeting about Renal Complement diseases featuring aHUS is about to begin.…
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